SharonCobb.com: "I saved my life"
Sharon is currently recovering from surgery. While we wait for her to come back to her blog, make every woman you know read this. You might be saving her life, too.
She writes:
By the time ovarian cancer is diagnosed, it’s usually too late. The odds of long term survival are between 10-20 percent. Stage one ovarian cancer, however, has a long term survival rate of over 90 percent. It’s almost never caught at that stage. *Almost* never.
Last month when I went for my annual physical I insisted on a CA 125, as I have done for a decade. Every year my Doctor tells me he does the test to appease me. This year was no different. In fact, this year, he was a bit cranky with me and told me to bring in some concrete proof that a CA 125 will catch ovarian cancer before it has spread. I told him of British studies that conclusively and consistently demonstrated that women who had this test every year had a very good chance of catching it early. Indeed, one British study I read said the CA 125 will catch ovarian cancer 2-5 months before it can be seen on a CAT scan or ultrasound. And with that, my doctor rolled his eyes and filled out the papers for the lab work.
The following week I got a call from his nurse. She told me my CA 125 was slightly elevated. I told her I wanted to meet with the Doctor in person and discuss where to go from here. I was fairly sure they would dismiss me, but surprisingly, my doctor agreed to meet with me the following week. But first, he wanted an ultra sound.
I met with him the following week and my ultra sound showed several tumors and cysts, though they were not defined as cancer. He decided to repeat the CA 125. (Hey…now who is a believer in this test? First time I didn’t have to ask for it!)
I was driving with Jake, my dog, over to Weight Watchers. I have a thing for chocolate, and Weight Watchers has chocolate smoothies that are only one point. Cruising toward my chocolate fix, my cell phone rings. The caller ID shows it’s a call from Vanderbilt. It could have been anyone, since all my doctors except one are there, but being the middle of the day, I knew it was from my gynecologist’s office about the CA 125. I took a deep breath and answered and didn’t even wait for a voice, I just said, “What are the results of the CA 125?” The nurse told me the numbers had more than doubled in the short period of time from the original test. I knew what that meant.
The Doctor called me later that night. His voice was shakier than mine. I can only guess he was thinking about how he had tried to discourage me about taking the CA 125. I didn’t see any need or reason to rub it in. I only made one reference to my insistence about having this test once a year to catch ovarian cancer in time, and I said, “Well. Here’s the data and proof you wanted.”
Next came the CAT scans to see what was where, and today is the surgery. Assuming I don’t die from the anesthesia or surgery, then I will be living proof that a CA 125 saved my life. I saved my life.
Pass it on, Sisters...




2 Comments:
Im a four year + one month survivor of stage four Squamous cell carcinoma. Head and neck patient.
When I got my DX i was given a one in three chance of surviving. here i am four years later :::knocking on wood:::
Ovarian is a much bigger deal. Right now I have a dear friend who's closest friend is going on three years now with ovarian. her CA125 is over 600 at last count (this past week) and that means the chemo shes on now isn't working. Tomorrow (10/8/2005) her tumor board meets in boston to see if they're going to do surgery. I would give anything if i could affect the outcome. I can't. By the time her symptoms became apparent she was stage 4. she's had three chemo protocols and she's running out of options.
I don't know what to say, really. For all you ovarian cancer patients out there I'll pray for you. And hell, I don't even believe in God. But I'll pray anyway.
it's strange to find this diary here because all day today i was thinking of posting an ovarian cancer diary at Our Word but just couldn't make myself do it. my friend diane is the woman renee speaks of above.
it's so important to be attuned to the symptoms of ovarian cancer, because they are subtle and easily shrugged off. from the National Ovarian Cancer Coalition :
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"Ovarian cancer is difficult to detect, especially, in the early stages. This is partly due to the fact that these two small, almond shaped organs are deep within the abdominal cavity, one on each side of the uterus. These are some of the potential signs and symptoms of ovarian cancer:
- Unexplained change in bowel and/or bladder habits such as constipation urinary frequency, and/or incontinence
- Gastrointestinal upset such as gas, indigestion, and/or nausea
- Unexplained weight loss or weight gain
- Pelvic and/or abdominal pain or discomfort
- Pelvic and/or abdominal bloating or swelling
- A constant feeling of fullness
- Fatigue
- Abnormal or postmenopausal bleeding
- Pain during intercourse
When the symptoms are persistent, when they do not resolve with normal interventions (like diet change, exercise, laxatives, rest) it is imperative for a woman to see her doctor. Persistence of symptoms is key.
Because these signs and symptoms of ovarian cancer have been described as vague or silent, only around 10% of ovarian cancer is found in the early stages. Symptoms typically occur in advanced stages when tumor growth creates pressure on the bladder and rectum, and fluid begins to form.
If vague symptoms persist longer than 4-6 weeks, insist on a thorough rectovaginal examination.
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